Note: In November 2018 I was diagnosed with severe Obstructive Sleep Apnea.Check my most recent posts on sleep apnea.
6: Foster The People – Call It What You Want
Chronic Fatigue Syndrome, Myalgic Encephalomyelitis, Post Viral Fatigue Syndrome, Post Infectious Fatigue Syndrome, CFS, ME, CFS/ME, ME/CFS, CFIDS, PVEF, PVFS, PIFS, SEID, Yuppie Flu… hell, I don’t care what you call it, I just want to recover! When people start arguing about what to call the damn thing, I know they’re in pointless waste of time shifting the deckchairs on the Titanic mode. Quit bickering and focus on the cure for fuck’s sake. Meanwhile, call it what you want:
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4 Comments
Diane O'Connor · August 17, 2016 at 10:24 PM
This is so interesting (the parallels that you and I have). Music is a huge part of my life and after we spoke on the phone something stuck in my mind. You shared that one of the things you did was ask yourself “What have I been holding off doing until I get well?” I started making a list for myself. One of the items was “Try to play guitar again.” I have some fibro issues so trying to wrap my arms around something that size has been painful for my neck and shoulders but I just started thinking “ok, what about a ukelele?” So for my 60th birthday I’m buying myself a ukelele!
Graham · August 19, 2016 at 10:16 AM
Awesome Diane! I acknowledge you for finding something that works for you and not giving up just because you’re not 100% well. I’d highly recommend joining a Ukelele class if you can, but if that’s not practical the application I’ve been using to learn Guitar is called Yousician, and it also supports Ukelele. Let’s jam online sometime!
Nancy R · August 17, 2016 at 12:34 PM
I miss playing piano, guitar, and clarinet. Hypermobile joints, Ehler’s Danlos. Even tried with all of my braces and finger splints on. Now that I’ve adjusted to altitude in Boulder, CO … maybe try singing?
Graham · August 19, 2016 at 10:18 AM
I think singing is a great outlet. It’s engaging, potentially social, and it gets the breathing going. I say go for it!