Just got this question via E-mail from a woman who has had ME since 1986 and thought I’d share my answer with you all:
Knowing how hard it is to be disciplined when one is exhausted, would you recommend Gupta, Dynamic NRS or something else?
My short answer is to focus your energy on getting the life that you want, rather than on recovery from ME per-se. That said: Continue reading “What Would I Recommend?”
Since the beginning of the year I’ve been studying Music Performance at a local tertiary college, and the experience has made me more convinced than ever that social isolation and repressed anger are, at the very least, perpetuating factors in Chronic Fatigue Syndrome.
Dragging myself to college every day when I don’t feel great has been a challenge, and it’s been a constant balancing act between participating in class when I have the energy and resting when I need a recharge. The interactions with other students have also brought a lot of my unresolved adolescent insecurities to the surface: in some ways, going to college is like going back to high school. My fears about whether I would fit in brought up a lot of anxiety for me, coupled with a very strong desire to try hard to make other students like me. I often had to take a deep breath and remind myself to focus on what I was learning and just have fun participating instead.
Continue reading “Using Music To Express Anger and Rage”
One of my most distressing symptoms of CFS for me is the tension headache that never really goes away. Another friend recovering from CFS recently mentioned her similar headache, and since I’ve got one right now and I’m in a bad mood, I feel like complaining a bit about it.
Back when I was a computer engineer, I used to get regular migraine-intensity headaches about once a month or so. I would spend hours every day engrossed in a computer screen and often felt a headache coming on in the afternoon. I was so obsessed with my work that I would just push through until the pain was so debilitating that I would need strong painkillers with codeine just to get through the day. Once I got to sleep I would be OK the next day, but if the pain was too intense to get to sleep, it would often escalate until the pain was so excruciating that I would be nauseous and vomit. Vomiting with a migraine was a horrible experience but would usually give me some relief, and then eventually I’d fall asleep.
The next day, I’d feel really groggy but the pain would mostly be gone and I’d be back to work. The day after that it felt like nothing had happened and I’d be back to go go go mode. Then a few weeks later I’d do it all again.
Continue reading “Headaches: Overdoing It, Anger/Anxiety and Adrenaline Withdrawl”
I recently came across a fascinating talk on YouTube by Dr Gabor Mate, a physician with a background in palliative care who wrote the book When The Body Says No: Understanding the Stress-Disease Connection. His talk covers the link between compulsive care-giving/people-pleasing behavior, and physical illness.
I really relate to what he says. I used to have a successful Engineering career from which I burned out several years before I came down with CFS. I too was a compulsive care-giver and people-pleaser.
While working as an engineer I was heavily involved at my local church and did volunteer work on a 24 hour telephone crisis line. I enjoyed the feeling of helping people in crisis, but I can see now looking back that I was in a constant state of stress. I often did late night shifts at the crisis centre with a migraine, doped up on codeine-based pain-killers and desperate for the shift to end so I could go home to bed before yet another suicidal caller rang. Meanwhile my relationship with my girlfriend of the time was slowly falling apart, I was losing interest in the career I used to love, and my faith in the religion I was brought up with was going down the toilet.
Continue reading “Reality Check For Compulsive Care-givers & People-pleasers”
I’ve just finished reading Joseph LeDoux’s most recent (2015) book Anxious: The Modern Mind in the Age of Anxiety, in an attempt to get a better handle on why I feel so anxious as I recover from CFS, and what I might be able to do about it.
LeDoux is the neuroscientist whose earlier work inspired Ashok Gupta’s amygdala hypothesis for CFS. Another fun fact about him is that he plays music in a band called The Amygdaloids. I’ve noticed that a lot of highly intelligent and creative people love playing music, even if it’s not their main gig in life. My guess is that it exercises the emotional side of the brain that often gets neglected in our overly analytical western society. Writing books about how emotions work in the brain isn’t the same as actually feeling something.
Continue reading “My Anxious Brain”
I was recently invited to create a video to share as part of the Community Of Hope for Recovery from CFS/ME/FM Facebook Group’s 12 Days Of Christmas event. It has a few key tips that I’m finding helpful in my recovery, and includes a special surprise gift at the end!
I thought you might enjoy it too, so here it is:
Continue reading “My Christmas/New Year Message And Recovery Tips”
I recently read Joe Dispenza’s book Breaking The Habit Of Being Yourself, which is all about how to use meditation to free your mind and body from the effects of your conditioning. I also spent a month using the associated guided meditations every day.
Overall, it’s a great book. It’s the kind of book I was thinking of writing in fact, so perhaps he’s saved me the trouble; but there are a couple of things in it that I found distracting:
Continue reading “Breaking The Habit Of Being Myself”
I recently joined a men’s group which now meets at my house once a fortnight. The idea of joining such a group was suggested to me a few years ago by a mentor who developed CFS after a traumatic car accident in which a friend of his was killed, and subsequently recovered by studying and practising emotional intelligence. They’re also highly regarded in the men’s work movement and in books like Steve Biddulph’s excellent book Manhood. A few years back I started hearing about them all over the place and when I start hearing about an idea from multiple sources, I begin paying attention.
It’s taken a few attempts to find a group that really works for me; this is my third men’s group in fact. The first one didn’t meet often enough to really get traction, and some of the participants seemed so stuck in their own ways that I found the meetings very frustrating. We spent tremendous amounts of time on situations that had seemingly trivial solutions, like one guy who was in a lengthy and expensive legal battle with his sister. One the basis of his telling of his side of the story, we all thought he owed her an apology not more litigation. He didn’t see it, and instead wanted our moral support for continuing to attack her in the courts over a dodgy property deal that he had engineered. I didn’t enjoy being around physically healthy guys who were wasting their energy on crap like that when my health was stopping me from moving forward.
Continue reading “Loneliness and My New Men’s Group”
I met a new friend with CFS recently who fell ill after breaking up with his girlfriend. He had been living with her for some time when he met another woman with whom he fell more deeply in love. As a result he broke up with his now-ex and started a relationship with the other woman. Although he didn’t cheat on his ex, the timing was rapid and it was a complete shock for her. He had a dilemma: It didn’t feel right for him to stay with her when he really loved someone else, but it didn’t feel good to dump her either given that he still cared about her and she’d done nothing wrong.
While he didn’t regret the choice to leave his ex-girlfriend for the woman he felt more strongly towards, he felt extremely guilty about hurting his ex’s feelings. She was understandably upset and her friends turned on him. The whole thing sounded extremely stressful.
It turns out that we have a lot in common. His day job is working as a software engineer, similar to my old career. He’s also very intelligent, articulate and creative; but in my experience engineers aren’t often well trained in the emotional coping skills required for dealing with stressful life events.
Continue reading “Guilt; Cultural, Family and Religious Conditioning”
I’ve spent the last month completing Ashok Gupta’s Meaning Of Life Experiment, after being reminded of it on the Community Of Hope For Recovery group on Facebook. It sounds like Ashok is doing a Deepak and expanding his teaching beyond just CFS sufferers to the masses. Here’s what I discovered about the meaning of life…
I really liked the effect of making the commitment to doing a 20 minute meditation every day using the meditations in the iPhone app. It gives you the choice of a 10 or 20 minute guided meditation led by Ashok’s familiar soothing voice. The Soften and Flow meditation sounded particularly familiar… It’s exactly the same as the one in his Amygdala Retraining Program; which must make the references to symptoms sound a bit out of place to people without any physical health condition.
I enjoyed the daily teaching videos too. While the metaphors he uses are new, the videos encapsulate a lot of what I learned during my counselling and life coach training and my own life journey from head to heart. Not bad given that you get this all for free given what I’ve forked out for a zillion courses over the years.
Continue reading “The Meaning Of Life Experiment”