I’ve just passed the one month point of wearing my Vivos mRNA Appliance®, so here is an update.
Overall, everything is going reasonably smoothly and the data from my CPAP machine is encouraging. I haven’t noticed any major changes in my daytime symptoms yet, but it’s still early days of a treatment that I anticipate will take 2 years.
After doing a lot of research into palate expansion options to treat my obstructive sleep apnea, I’ve decided to go with the Vivos DNA appliance. Actually, I’m getting the mRNA version which also advances and expands the lower jaw. This should give me more tongue space in my mouth, stop it blocking my airway and get me off my CPAP machine earlier.
Several dentists trained in dental sleep medicine, an othrodontist and a couple of ENTs have told me that I have underdeveloped jaws and a retrognathic maxilla as a result of the orthodontic extractions and retractive braces that I had when I was aged 13. This has left too little space in my mouth for my tongue, which collapses into my airway when I sleep. The condition is compounded by the gradual loss of muscle tone in my airway as I have aged and probably lead to my chronic fatigue developing at age 40, but it’s likely to have been affecting me most of my life. (more…)
I’ve just passed seven months using CPAP, so here’s an update. It took a while for my nose to stop hurting when I first started using it, and fortunately Chris Kelly from AER Healthcare recommended I try paw paw ointment, which turned out to be a lifesaver. As a result, my compliance over the period has been over 98%. Here’s my AHI overview during that time as reported by OSCAR:
My AHI results using CPAP for 7 months
I’ve spent the last few weeks actively researching surgical, orthodontic and dental treatments for obstructive sleep apnea and visiting a lot of specialists to fully explore my options. I have underdeveloped jaws and nasal obstruction causing severe sleep apnea, possibly the result of extraction/retraction orthodontic work done when I was 13.
I visited orthodontist Derek Mahony recently who referred me to an ENT surgeon to investigate Maxillomandibular Advancement (MMA) surgery and Distraction Osteogenesis Maxillary Expansion (DOME). The success rate is high but it looks nasty. Derek said I would need 12 months of braces before the surgery, and I would need to be on CPAP in the meantime; so no matter what I do I realised I need CPAP to stay alive while I’m getting a permanent treatment sorted out. I’ve been on it for about a month and I’m hoping my general health will improve while I explore my options to expand my jaws and sleep naturally again.
It’s exactly ten years to the day since I started this blog. Oh my god, that’s a fucking long time to feel like shit every minute of every day. I’m so angry about the whole thing, there aren’t even words to describe it.
Fortunately, there is some hope on the horizon for me, so I channel that anger into action that will hopefully restore my health. It’s also just over 12 months since I was diagnosed with severe obstructive sleep apnea (OSA), which I now suspect is the cause of my malaise. It turns out that getting a really good nights sleep is incredibly important for your long-term health. The symptoms of CFS and sleep apnea are both like an extreme version of what athletes experience when they overtrain, the common link being that the body isn’t getting sufficient chance to repair itself. (more…)
I haven’t posted in a while as I’ve been doing Dan Neuffer’s ANS Rewire program and decided to focus on just doing that rather than providing updates on my progress. He even suggests not blogging about the illness as part of the program and I’ve been following his advice.
However, something significant happened part-way through the program: I did a sleep study in hospital during November last year and the results showed that I have severe obstructive sleep apnea (OSA). The sleep specialist believes this would explain why I’m tired all the time.
I had put off doing a comprehensive sleep study because an overnight sleep oximetry test I did at home shortly after falling ill over 10 years ago showed no abnormality in my blood oxygen level. The test involved sleeping with a machine which measures blood oxygen via a sensor clipped on my finger. In someone with sleep apnea, you would normally expect their blood oxygen level to dip significantly each time they experience a blocking of their airway, called an apnea. In my case the result was sufficiently normal that my doctor at the time didn’t recommend any further action.
I’m also not in a high risk group for sleep apnea since I’m not overweight, I don’t drink and don’t smoke. However I have noticed that when I lie on my back I wake up choking, and a partner recently noticed that I wake up in the middle of the night wheezing. On this basis, the sleep specialist I saw in November suggested doing a full sleep study. (more…)