Anxiety

Headaches: Overdoing It, Anger/Anxiety and Adrenaline Withdrawl

One of my most distressing symptoms of CFS for me is the tension headache that never really goes away. Another friend recovering from CFS recently mentioned her similar headache, and since I’ve got one right now and I’m in a bad mood, I feel like complaining a bit about it.

Back when I was a computer engineer, I used to get regular migraine-intensity headaches about once a month or so. I would spend hours every day engrossed in a computer screen and often felt a headache coming on in the afternoon. I was so obsessed with my work that I would just push through until the pain was so debilitating that I would need strong painkillers with codeine just to get through the day. Once I got to sleep I would be OK the next day, but if the pain was too intense to get to sleep, it would often escalate until the pain was so excruciating that I would be nauseous and vomit. Vomiting with a migraine was a horrible experience but would usually give me some relief, and then eventually I’d fall asleep.

The next day, I’d feel really groggy but the pain would mostly be gone and I’d be back to work. The day after that it felt like nothing had happened and I’d be back to go go go mode. Then a few weeks later I’d do it all again.

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By Graham Stoney, ago

My Anxious Brain

I’ve just finished reading Joseph LeDoux’s most recent (2015) book Anxious: The Modern Mind in the Age of Anxiety, in an attempt to get a better handle on why I feel so anxious as I recover from CFS, and what I might be able to do about it.

LeDoux is the neuroscientist whose earlier work inspired Ashok Gupta’s amygdala hypothesis for CFS. Another fun fact about him is that he plays music in a band called The Amygdaloids. I’ve noticed that a lot of highly intelligent and creative people love playing music, even if it’s not their main gig in life. My guess is that it exercises the emotional side of the brain that often gets neglected in our overly analytical western society. Writing books about how emotions work in the brain isn’t the same as actually feeling something.

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By Graham Stoney, ago

Taking up Swimming Lessons

About seven weeks ago I finally got around to taking swimming lessons. It’s something that I had been planning to do ever since moving to live near the beach 18 months ago.

How Hard Can It Be?

There are a number of reasons for this: Firstly, I don’t feel safe in the ocean when I’m out of my depth. Deep down I know that I’m not a good swimmer and whenever I’m in deep water my body responds with a lot of anxiety. I figured that if I knew I could swim confidently I wouldn’t get so anxious about not being able to touch the bottom. I go body boarding a lot and I feel relatively safe with the body board strapped to my arm, but I get caught in rips all the time and I know that if the strap was to break or I lost the board somehow, I’d be in real trouble.

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By Graham Stoney, ago

My Visit to the Dentist

Warning: this post may contain graphic depictions of bodily fluids.

I’ve been slowly working through all the things that I put off because I’ve been sick, to reduce my sense of overwhelm. One of the things that I’ve been putting off for a long time, is going to the dentist to have a regular checkup and clean.

Three things prompted this: the first was simply that I haven’t been to the dentist in many years even before I became ill almost seven years ago, and I certainly haven’t been since.

Secondly, my gums of started to bleed during brushing lately and that bothers me.

Thirdly, the tension headache that I have most of the time tends to move around and often settles in my teeth, either on my upper jaw, my lower jaw or both at the same time. It occurred to me that the symptoms that I have in my head could be related to toothache or gum disease, and I have also heard theories relating migraines and even CFS to dental or orthodontic work; so I thought I should probably check that out.

Going to the dentist has never felt like much fun for me, so I was feeling pretty anxious. My previous experience of dentists had always been pretty painful, and they keep reminding me that the evil guy in The Little Shop of Horrors who chose to be a dentist so he could inflict pain on other people.

I felt like this guy

I felt like this guy

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By Graham Stoney, ago
silhouette of man holding hands above head against colourful sunset sky

I Continue To Recover… Gradually

It’s been quite a while since I last posted here, as my continued recovery means I have more time and energy to engage in the life that I want, and less desire to talk about how hard recovering from CFS can be. But I get occasional emails from people who have been following this blog asking how I’m doing, so I thought it was time for an update.

My physical symptoms now resemble a fairly mild cold, and the occasional cough. I no longer push myself into stressful situations that make the cough worse, so it doesn’t bug me so much. I still feel a weird sort of tiredness with a background sense of anxiety that varies from mild to moderate. It’s kind of like the tiredness and the anxiety are playing some kind of dance. It might feel like I need a lie down, but going for a leisurely walk along the beach can work just as well. Other times, I really need the lie down and so I take it.

The other weird symptom I have is a tense feeling in my head, which moves around. Right now it’s in my upper jaw and temples. It’s not exactly painful; sometimes it’s just unpleasant, and other times I can be so engrossed in something I’m doing that I don’t notice it. Perhaps it’s boredom and truly disappears when I’m thoughtfully and physically engaged in some task. It seems to get stronger when I’m feeling angry, and turns into a debilitating headache when I’ve been overdoing things… which I take pains now not to do.

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By Graham Stoney, ago