Comments for Chronic Fatigue Survivor's Blog http://cfs-survivors.org A blog about my experience recovering from Chronic Fatigue Mon, 17 Jun 2013 02:56:52 +0000 hourly 1 Comment on My Cortisol levels are sky high by Nancyhttp://cfs-survivors.org/blog/2013/02/22/my-cortisol-levels-are-sky-high/#comment-1509 Nancy Mon, 17 Jun 2013 02:56:52 +0000 http://cfs-survivors.org/?p=576#comment-1509 Hey, I've been working on the same thing for the last two months. After reading CFS Unravelled, I had two months of good energy days! Then I decided it was time to go off my pain meds and the last month was a bit of a write off. At least I'm functioning okay and now without them, and hoping to get back to the place I was before that change. Keep telling myself that I have to do it even if nothing feels like it's changing today, it's all of those days, weeks, and months adding up to let the body heal itself and get to good change over the course of this year. I notice a big different in if I'm doing my walking every couple of days or not. Would like to follow how your recovery is going and I'll update you on mine. :) Hey, I've been working on the same thing for the last two months. After reading CFS Unravelled, I had two months of good energy days! Then I decided it was time to go off my pain meds and the last month was a bit of a write off. At least I'm functioning okay and now without them, and hoping to get back to the place I was before that change. Keep telling myself that I have to do it even if nothing feels like it's changing today, it's all of those days, weeks, and months adding up to let the body heal itself and get to good change over the course of this year. I notice a big different in if I'm doing my walking every couple of days or not. Would like to follow how your recovery is going and I'll update you on mine. :)

]]> Comment on About by Grahamhttp://cfs-survivors.org/about/#comment-1507 Graham Fri, 10 May 2013 01:52:02 +0000 http://cfs-survivors.org/blog/?page_id=2#comment-1507 Thanks Matt. Yes, it does seem to be a nervous system condition. I totally agree with you. Cheers, Graham Thanks Matt. Yes, it does seem to be a nervous system condition. I totally agree with you. Cheers, Graham

]]> Comment on About by Matthttp://cfs-survivors.org/about/#comment-1506 Matt Wed, 08 May 2013 16:25:58 +0000 http://cfs-survivors.org/blog/?page_id=2#comment-1506 RE: Overactive immune system.I'm firmly of the belief that this is a symptom rather than the cause, I believe that for most people ME/CFS is a nervous system condition, chronic fight/flight response and as a consequence the immune system goes into overdrive.The reason why some people advise taking immune boosting supplements is that whilst a majority of people with ME/CFS actually catch less colds etc due to the aroused state of their immune system, some people experience an immune system crash that makes them especially vulnerable to anything that is going around.Anyway good luck with it all, from experience Somatic Experiencing and TRE seem to offer the best treatment that provides a solid underlying diminishing of symptoms, as opposed to some treatments where symptoms diminish but then come back, any improvement I've found from SE and TRE has been maintained, which is great, although they can take a long time, patience is the key when dealing with trauma, the body will only release what it can at that moment, go to fast and you risk re-trauma. RE: Overactive immune system.

I'm firmly of the belief that this is a symptom rather than the cause, I believe that for most people ME/CFS is a nervous system condition, chronic fight/flight response and as a consequence the immune system goes into overdrive.

The reason why some people advise taking immune boosting supplements is that whilst a majority of people with ME/CFS actually catch less colds etc due to the aroused state of their immune system, some people experience an immune system crash that makes them especially vulnerable to anything that is going around.

Anyway good luck with it all, from experience Somatic Experiencing and TRE seem to offer the best treatment that provides a solid underlying diminishing of symptoms, as opposed to some treatments where symptoms diminish but then come back, any improvement I've found from SE and TRE has been maintained, which is great, although they can take a long time, patience is the key when dealing with trauma, the body will only release what it can at that moment, go to fast and you risk re-trauma.

]]> Comment on My Cortisol levels are sky high by Jeffhttp://cfs-survivors.org/blog/2013/02/22/my-cortisol-levels-are-sky-high/#comment-1505 Jeff Sat, 16 Mar 2013 11:15:20 +0000 http://cfs-survivors.org/?p=576#comment-1505 It's interesting, the relationship between adrenaline, cortisol and chronic fatigue. When I was dealing with CFS through school I knew my stress levels were super high and it was affecting my physical functioning even more than CFS usually does.Sometimes it's really hard to reduce the stress in your life and that can become a stress in itself. But getting our adrenaline levels up is a really bad idea and we need to avoid stress as much as we can (easier said than done).Maybe someone reading this could find my website of some help. It's just lots of info about Chronic Fatigue and related issues. The url is: http://battlingcfs.com It's interesting, the relationship between adrenaline, cortisol and chronic fatigue. When I was dealing with CFS through school I knew my stress levels were super high and it was affecting my physical functioning even more than CFS usually does.

Sometimes it's really hard to reduce the stress in your life and that can become a stress in itself. But getting our adrenaline levels up is a really bad idea and we need to avoid stress as much as we can (easier said than done).

Maybe someone reading this could find my website of some help. It's just lots of info about Chronic Fatigue and related issues. The url is:
battlingcfs.com

]]> Comment on Update on Mickel Therapy progress by Sandyhttp://cfs-survivors.org/blog/2012/05/15/update-mickel-therapy-progress/#comment-1504 Sandy Sun, 16 Dec 2012 06:33:19 +0000 http://cfs-survivors.org/?p=541#comment-1504 Nice post which that means not sitting behind a computer screen blogging all day. Instead I’ve been playing keyboard and guitar more, and going out more. I love playing guitar by the beach.Thanks a lot for posting. Nice post which that means not sitting behind a computer screen blogging all day. Instead I’ve been playing keyboard and guitar more, and going out more. I love playing guitar by the beach.Thanks a lot for posting.

]]> Comment on Update on Mickel Therapy progress by Deborahhttp://cfs-survivors.org/blog/2012/05/15/update-mickel-therapy-progress/#comment-1503 Deborah Sun, 02 Dec 2012 21:23:22 +0000 http://cfs-survivors.org/?p=541#comment-1503 i did have some flu like symptoms. they originally told me it was after effects of glandular fever. The test for haemochromotsis is so easy, a genetic test done by taking blood. I really hope this helps. I wish you all the very best. i did have some flu like symptoms. they originally told me it was after effects of glandular fever. The test for haemochromotsis is so easy, a genetic test done by taking blood. I really hope this helps. I wish you all the very best.

]]> Comment on Update on Mickel Therapy progress by Grahamhttp://cfs-survivors.org/blog/2012/05/15/update-mickel-therapy-progress/#comment-1502 Graham Sat, 01 Dec 2012 22:28:10 +0000 http://cfs-survivors.org/?p=541#comment-1502 Thanks for the tip-off Deborah. I'm wondering if you experienced flu-like symptoms with haemochromotosis, or was it "just" fatigue? Thanks for the tip-off Deborah. I'm wondering if you experienced flu-like symptoms with haemochromotosis, or was it "just" fatigue?

]]> Comment on Just passed six months on the Gupta programme by Grahamhttp://cfs-survivors.org/blog/2010/07/11/just-passed-six-months-on-the-gupta-programme/#comment-1501 Graham Sat, 01 Dec 2012 22:26:43 +0000 http://cfs-survivors.org/?p=392#comment-1501 I don't have MCS symptoms as far as I can tell, so I'm not in a good place to advise you. Gupta believes that it's related to the nervous system and that his program could help you. I can't say it's healed me, but the theory behind it might be correct. Good luck! Graham I don't have MCS symptoms as far as I can tell, so I'm not in a good place to advise you. Gupta believes that it's related to the nervous system and that his program could help you. I can't say it's healed me, but the theory behind it might be correct. Good luck! Graham

]]> Comment on Update on Mickel Therapy progress by Deborahhttp://cfs-survivors.org/blog/2012/05/15/update-mickel-therapy-progress/#comment-1500 Deborah Sat, 01 Dec 2012 09:44:18 +0000 http://cfs-survivors.org/?p=541#comment-1500 Hi guys, I thought I had CFS and was really freaking out and turned to blogs like this for answers. I am extremely lucky as it turns out I have haemochromotosis, a hereditary and very treatable blood disease. My main symptom was chronic fatigue. The reason I am posting is in the hope that maybe someone thinking they have CFS may actually like me have a very treatable problem. All I am saying is if you have chronic fatigue get your doctor to test for haemochromotosis just in case. doctors seem to be very quick to diagnose CFS without checking all other possibilities. The earlier in life you get diagnosed the less serious it is. I know I am very lucky and I wish all of you with CFS a quick and permanent recovery. Much love xxx Hi guys, I thought I had CFS and was really freaking out and turned to blogs like this for answers. I am extremely lucky as it turns out I have haemochromotosis, a hereditary and very treatable blood disease. My main symptom was chronic fatigue. The reason I am posting is in the hope that maybe someone thinking they have CFS may actually like me have a very treatable problem. All I am saying is if you have chronic fatigue get your doctor to test for haemochromotosis just in case. doctors seem to be very quick to diagnose CFS without checking all other possibilities. The earlier in life you get diagnosed the less serious it is. I know I am very lucky and I wish all of you with CFS a quick and permanent recovery. Much love xxx

]]> Comment on Just passed six months on the Gupta programme by rogeliohttp://cfs-survivors.org/blog/2010/07/11/just-passed-six-months-on-the-gupta-programme/#comment-1499 rogelio Wed, 24 Oct 2012 22:05:22 +0000 http://cfs-survivors.org/?p=392#comment-1499 most chemicals smells make me sick for examp. plastics, gasoline, perfumes, creams, ect.... i wanna try the gupta programme but i have few resources, i don't wanna waste my money, please i need your help, my life is a mess, i need your advice on the best therapy for multiple chemical sensitivity most chemicals smells make me sick for examp. plastics, gasoline, perfumes, creams, ect.... i wanna try the gupta programme but i have few resources, i don't wanna waste my money, please i need your help, my life is a mess, i need your advice on the best therapy for multiple chemical sensitivity

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