It’s been quite a while since I last posted here, as my continued recovery means I have more time and energy to engage in the life that I want, and less desire to talk about how hard recovering from CFS can be. But I get occasional emails from people who have been following this blog asking how I’m doing, so I thought it was time for an update.
My physical symptoms now resemble a fairly mild cold, and the occasional cough. I no longer push myself into stressful situations that make the cough worse, so it doesn’t bug me so much. I still feel a weird sort of tiredness with a background sense of anxiety that varies from mild to moderate. It’s kind of like the tiredness and the anxiety are playing some kind of dance. It might feel like I need a lie down, but going for a leisurely walk along the beach can work just as well. Other times, I really need the lie down and so I take it.
The other weird symptom I have is a tense feeling in my head, which moves around. Right now it’s in my upper jaw and temples. It’s not exactly painful; sometimes it’s just unpleasant, and other times I can be so engrossed in something I’m doing that I don’t notice it. Perhaps it’s boredom and truly disappears when I’m thoughtfully and physically engaged in some task. It seems to get stronger when I’m feeling angry, and turns into a debilitating headache when I’ve been overdoing things… which I take pains now not to do.