Chronic Fatigue Survivor's Blog

A blog about my experience recovering from Chronic Fatigue

Browsing Posts published by Graham

The last few days have been pretty rough as I've been feeling overwhelmed with fear and anxiety. I have an almost constant tense feeling in my head which waxes and wanes a little, but is there most of the time. I've been finding it difficult to sleep at night with feelings of fear and dread, usually accompanied by fearful thoughts like "Will I ever recover?" and "Am I stuck with this? How long for?" I feel very shaken by the whole experience and often wonder if the four years it's been so far will drag out to five, ten or more. The whole thing sends shivers and sweats right through my whole body.

It seems like the panic attacks I used to get years ago are back. Frankly, that scares the living shit out of me. I could hardly sleep on Friday night (Good Friday my ass!) and found some solace listening to this talk about being overwhelmed with fear, anxiety and panic. When I hear the fear in the woman's trembling voice as she asks her question of the spiritual guru starting "I am overwhelmed with fear and anxiety and panic..." I start to cry, which is a good tension release. His answer is comforting too. There seems to be something deep in my unconscious that's terrified of something. Fuck knows exactly what, or what to do about it. I like to think that it's at the very root of all my anxieties about what other people think of me, about women, about relationships, about being wrong and/or foolish, about failure, about not feeling good enough and about feeling self-conscious, hypervigilant and just generally bloody insecure. In my fantasies I root this troublesome bastard out and get to live the rest of my life feeling free (and healthy as a bonus).

I've recently given up Toastmasters since it seems pointless learning to deal with anxiety up on stage when I can't handle the feelings of panic I get just lying down to sleep. I also recently bailed out of an Improv contest as just the thought of being on stage and out of control was causing me to feel panicy. That's a massive bummer because I actually really love playing Improv games, and I was hoping to fall into a new circle of friends and a new community there. Maybe that's still possible, but it looks like I'm going to be in the audience for the time being; probably feeling envious of my friends on stage having so much fun. My dream of one day being a professional public speaker, comedian or comic actor seems totally shot to pieces right now. Oh well, I seem to have lost my sense of humour anyway.

A huge fear that I feel is about what other people think of me. As long as I can remember, I've felt afraid of social situations while also having an intense craving to connect with other people, feel appreciated, loved and validated by others. I wish I could switch this off and just feel free. That craving is strongest when I see a woman I find attractive, and that's when the fear is most crippling too. I feel like a failure having not found a life partner at 43 years old, and one of my childhood fears was precisely this. For some strange reason I always saw marriage as a prerequisite for happiness when I was a kid, which is particularly odd given how turbulent my parent's relationship seemed to be. I also remember feeling very fearful after a few weeks of feeling ill way back in 2008 that maybe I had chronic fatigue. They may just be self-fulfilling prophecies but for me it appears that some of my biggest fears have been coming true lately and this also scares the crap out of me.

I feel like an abject failure personally. All this fear, anxiety and panic has undermined my self-confidence and is the exact opposite of the sort of man I long to be. I think this puts a terrible barrier in the way of my relationships with women that I'm attracted to since I get overwhelmed with panic just meeting them, and this makes me even more fearful of how they respond to me. I don't have a problem relating to women as friends since I'm pretty open nowadays, but when I meet a girl I really like and find sexually attractive my head just puts this massive self-sabotaging barrier in the way. I recently met a really cute, fun girl at Improv who I like, and she gets on like a house-on-fire with another guy who seems so laid back. Meanwhile I sit there watching feeling jealous and insecure. I hate feeling so insecure, and this fatigue is bringing it all to the surface. I'm going to a Tantra retreat for men next weekend which may help but I'm already pretty jaded and don't see any magic answers to my anxieties around being openly sexual with women. Ironically I've just published a book on confidence and I realize all-too-painfully that I don't live up to my own expectations. Other people seem to find my advice helpful, but I can't really say I've nailed the problem myself and I hate feeling like a fraud. That's a double-whammy since I was relying on the book as a source of income to lessen my financial anxiety and so now that's not likely to work either.

My Mickel Therapist says that it's normal for symptoms to get worse when people start the therapy, which gives me a small sense of hope that this is just a passing thing. But I'm also pretty skeptical at the moment about this therapy and just want some concrete results. I continue to go to an anxiety and depression support/therapy group twice a week which brings up stuff for me, but it seems like a long-haul process. The guy who runs it wants to see me one-on-one but I'm reluctant to start therapy with yet-another-therapist. I think I've done enough talking and need to do something more primal like hit something or someone instead; if only I wasn't afraid of it leaving me feeling exhausted. If the Mickel Therapy doesn't work, I plan to take up Brazillian Ju Jitsu and Mai Thai kickboxing to see if some mindful violence can help with the anxiety. I've only been doing Mickel for a few weeks but I'm just so desperate for the fear to subside and my skepticism is causing me to look for alternatives already.

All this whiny complaining bugs me too. I swear I'm not just doing it for attention, or at least not consciously. The tension in my head and the fear and panic are real and overwhelming. I hate feeling like a victim to all the bullshit in my head, especially when I've read so many books and done so many courses on positive thinking, emotional healing, therapy and all the rest of it. The thought "Why would any attractive woman want to go out with me like this?" pretty much sums up the crux of my relationship anxiety. I'm fucked. Actually, some sex would be a nice distraction come to think of it... Don't get me started on that frustration. I've just started reading Portnoy's Complaint and although I'm not Jewish and didn't masturbate until very late in life because I thought it was sinful, I can relate to a lot of what he says about his mother. Reminds me a bit of one of my favorite Woody Allen films Oedipus Wrecks in New York Stories. I've read a heap of books on women, dating and seduction and they all seem to involve putting on a persona that feels fake and frightening to me. I like acting and all, but anything that feels even the slightest bit deceptive triggers huge stress in me and fear of being caught, getting things wrong, etc etc. Yet I dropped into a pub to listen in to some live music down in Bondi the other night after therapy group, and saw this guy there with tattoos acting like a jerk to this bunch of women... he started going off at one of them about being jealous of him hitting on another girl (who was clearly enjoying it at the time) and a few minutes later they were all over him hugging, arms around him, wanting his attention. Complete opposite of my experience. I know it's my responsibility to "fix" this if I ever want a relationship with an attractive woman, and I hate just whining about how unfair it is that women go for bad boys over decent shy guys but... fuck it, I can't even be bothered finishing this sentence.

Mickel therapy is all about feelings and my therapist says that the anxiety is just because my pressure cooker of emotions is full and so anxiety comes bursting out. I want to release the pressure so I'm trying to avoid too much analytical thinking and just stay with my emotions. Similar deal with the group therapy. I can see that I have a long history of avoiding painful feelings of loneliness, sadness and fear by getting engrossed in the head-space of computers so I've been trying to avoid that... with mixed success. I spend time playing songs on guitar that express how I feel, and I recently borrowed a bunch of books on guitar playing and songwriting from the library. One day I'd like to be able to express my distraught feelings through my own songs. That's part of what I see myself doing on stage in my dreamy future imagination. Meanwhile I'm working on Cold Chisel's You Got Nothing I want, which is how I feel about the situation I'm in... the thought of a good scream seems quite comforting. I'm also working my way through the library's massive DVD collection in the hope of finding more joy and fun in the midst of my exhaustion.

Surely there's more to life than just battling with fear. When do I get to have some good old fashion fun?

I recently met a woman from Australia on the Internet who had recovered from CFS using Mickel therapy, came across this blog and contacted me. She had so much energy that when we first chatted on Skype, I told her I felt I wanted to punch her in the face. She attributed her recovery to Mickel Therapy she did over the Internet with a therapist in the UK, who she raved about. I did a bit of research, contacted the therapist she recommended and decided "what the heck do I have to lose?" and went for it.

I'm not going to go into an analysis of how Mickel Therapy works because it's all about getting in touch with the emotions behind the symptoms I'm feeling, and analytical thinking suppresses emotions. I was swayed by the description on Kim Ayers's blog about his experience of Mickel Therapy. Kim was also in a documentary about the treatment.

I can already see that some of my symptoms may be my body's way of telling me "I'm Bored!" and have decided to do more fun things that I've been putting off on the premise that I don't have the energy. For instance I finally went to see the Picasso exhibition at the Art Gallery of New South Wales on Monday, which was really cool.

I'm going to continue to go to the therapy group I go to twice a week, which helps me get in touch with my emotions and express them verbally, while I also use the Mickel Therapy tools to take action in response to emotions and symptoms. I'm cautiously optimistic. Time will tell, and I'll keep you informed of any breakthroughs and particularly of how I feel during the process.

Today I'm going to grab some breakfast/lunch, watch a coach training DVD, ride my bicycle briefly (after fixing the flat tyres since I haven't ridden it in 4 years), and go to a coach training session in the afternoon. Tonight I'll chill out with a good movie DVD.

Right now, I feel pretty calm, a little excited, and a little anxious.

I've been loosely following the diet in Adrenal Fatigue by Dr James Wilson for a few months now and I notice that my symptoms have changed a little lately. I seem to be feeling less shaky in my body and my arms feel calmer. In fact it feels a bit weird; I think I've been so used to the "wired" feeling that goes along with CFS that now when my arms are at rest, they just feel oddly dead. But not in a bad way. I'm hoping this is consistent with my adrenal system switching off being on overdrive all the time, and now I might start to feel a little better. So far the other main symptom is that my head feels like it's cased in lead a lot of the time, or like I'm wearing a beanie that's a few sizes too small. It's a tiny bit unpleasant, but not anything as bad as the debilitating headaches I had previously been getting.

I've also finally decided to drop a lot of the fun stuff I was doing that was causing me more stress. I can see that I habitually do too much stuff, and while it was all great stuff to do, I was just feeling overwhelmed a lot of the time. I've decided to quit Toastmasters and put my plans to become a comedian on hold. I feel like I'm giving up my dreams, but it's necessary if I'm going to have a life that feels worth actually living. Meanwhile I'm going to keep writing in the mornings when I feel fairly motivated, and take the afternoons off to meditate and play guitar. I think this should be sustainable.

For the last few months I've also been going to group therapy sessions three times a week. The facilitator gets us to focus on expressing how we feel, and everyone in the group triggers everyone else so the process flows along nicely. It's all about getting out of my head and into my feelings. I think this is contributing to me feeling less anxious, plus I've taken the opportunity to express a few emotions that I felt were inappropriate like lust and anger; I always know I'm making progress when my heart is racing and my head is thinking "What will they think?". That's my cue to share what's really going on. Some other friends tell me I'm really brave for doing this, but for me it's just what I need to do to heal some of the internal shame that keeps me feeling anxious, overwhelmed and burned out.

I have also been doing a little research into Mickel Reverse therapy, which is based on a similar premise to the Gupta programme that the body gets stuck in fight-or-flight mode, but the focus is on the hypothalamus instead of the amygdala. The idea is to identify the emotions underneath physical symptoms and learn to deal with the emotion so the symptom goes away. I suspect that dealing more directly with emotions would make Mickel therapy more powerful than Gupta. But it also sounds very similar to what I'm doing in the therapy group, so I'm wondering whether it's worth splashing out the $1300 it would cost for a series of Mickel sessions. I have a hunch they're going to teach me to do things I'm already doing; but maybe it'd be more efficient and I'd get better faster. If that's the case, it's probably worth it. Meanwhile my cash is running low and my online business is taking off much slower that I'd like, so financial stress causes me more anxiety than I'd like. Hopefully a zillion guys will hit my website soon and I'll start earning consistently... but who knows.

I've also added Vitamin B12 supplements to my diet, since it's meant to be good for the nervous system. Aside from that I don't take any exotic supplements: just a multi-vitamin and some Vitamin C each day. Can't say I've ever felt any real effect from any vitamin supplements but the B12 may be working to make my body less jittery. Here's hoping.

Meanwhile I've been applying my no-rush rule more consistently the last few days, and taking more time out to just relax and enjoy life. I was running around from one healing workshop/coaching session to another lately and it was giving me headaches. People kept telling me that slowing down is the answer and I think I'm finally starting to listen.

A friend of mine just asked on Facebook how I'm doing, so I thought it was time for an update

I've been pretty up-and-down lately with lots of headaches and exhaustion; but I'm taking it easy today and not feeling too bad. I've been going to a therapy group to deal with anxiety, and that seems to be helping. I did some negative belief work with a woman I met on the internet; but I'm not sure it was effective enough to justify the cost. I haven't been doing my Art Of Living practice so much lately, but I think the 3 months I spent doing it hard-core helped get my lung muscles back into shape. Lately I've also been doing some light weight work with dumbbells & sit-ups on the days when I don't feel too bad. I've also been sticking to the diet principles in the Adrenal Fatigue book.

I work for myself as a writer but I don't earn much money yet and haven't been very motivated lately; but maybe I just need to take it easy anyway. My last project didn't really take off, and I'm keen to move on but I don't like writing when I don't feel inspired. I've watched 5 Woody Allen movies in the last week, and listened to the first 6 Harry Potter books on CD since last month; I chalk that up to "research".

Embracing the idea of just experiencing whatever I feel, rather than struggling against it, has given me a little more peace of mind. Yet other times I just feel really angry. In a repressed kind of way.

Oddly enough I've just got into an Improv show which I'm really looking forward too; somehow when I'm on stage I don't feel the anxiety so much. I just don't think I have time to feel it. How weird is that?

Has anyone tried The Chrysalis Effect Programme? Beneath the rather cheesy Internet marketing spin, what they're offering sounds pretty consistent with adrenal fatigue and the ideas in the Gupta Programme. They seem to get the mind/body connection thing and the importance of emotional support in dealing with this illness.

I've been using the free meditation download they offer, and I quite like it. I figure anything that reduces stress is good for this illness whatever the underlying cause turns out to be. I could relate to a lot of what they say in their Essentials Guide which you get for free when you register on the site. I am a A Type driven person, and many of my friends with CFS are (or at least, were before they fell ill) too. They take a holistic approach and are offering a support community, which is probably particularly helpful if you don't know anyone else who is suffering from CFS, has recovered or really understands what we go through. I don't know if it's worth 19 pounds a month, but I've spent a lot more than that on my recovery so far. It's probably worth at least having a look at what they're offering.

That said, I sure hope they have a sense of humour! After you enter your email address, watch their video.

Then have a look at this hilarous parody:

After all, laughter is the best stress relief...

I spent the last 2 months staying at my sister's holiday house at Hawks Nest, about 3 hours drive north of where I normally live in Sydney. The plan was to get away and relax. I ended up working quite a lot, and having a lot of headaches. When I rested for long enough, the headaches went away. Hardly surprising really. But then my restlessness would kick in and I'd just want to go and do something. I got a lot done but I realize that as a writer, the more you write the more you realize that you have more to say. It never ends. On the plus side the income from my websites is slowly increasing, which lessens my sense of financial stress. It's still not nearly enough to live on and only growing slowly. Some days I feel depressed about this but there's not much else I can really do right now.

Anyway, I spent much of my time either relaxing at the house, writing content for my blogs, or working down at the local library which had free internet access and was open Monday, Wednesday and Friday. I don't work Saturdays. They dolled out the internet access in 2 hour blocks, and eventually I realized that if I only worked 2 hours maximum per day, I didn't get headaches but did have a sense of moving forward. After work each day I went and either lay on the beach or sat by the lake and just relaxed. It was beautifully peaceful and quiet up there, far away from the crazy city life I normally live. I didn't really feel very lonely. A few friends came and visited which was great, and I had heaps of books to read and DVDs to watch to occupy my time. I was a mixed blessing that the wireless internet adaptor I'd bought didn't work well enough at the house for me to work from home; kinda forced me to take a bit of a break on Tuesday and Thursdays when the library was closed.

While I was away I finally got around to doing some Internet research into Adrenal Fatigue. A girl in my acting class last year said she suffered from it, and it immediately sounded very familiar. I stumbled upon the Wikipedia article on Neurasthenia, a.k.a. Nervous Exhaustion, which also matches my symptoms very closely. Sounds pretty consistent with Ashok Gupta's hypothesis and many of the suggestions in the Gupta program match the advice given in Dr Lam's article on Adrenal Fatigue. I'm going to be following this advice more closely; especially the bits about diet, going to bed earlier, and taking B-group vitamin supplements. I feel nervous a lot of the time, find it hard to relax and always feel like there's a lot of stuff to do, which all fits the pattern.

I've also been continuing my morning Yoga, breathwork and meditation almost every day; except a few times when I've woken up with a really bad headache or just felt too cranky to bother. But they're in the minority. It seems to be gradually calming my nervous system and I'm not feeling so resistant to doing it. I feel a little less jumpy and shaky. The weather at home is warmer now, so I do it out in the backyard behind my block of units in the sun. I start off with Surya Namaskara (salute to the sun) which is a bit silly to do it in my living room where there is no sun. First time I ventured into the backyard to do it, I worried about the neighbours in the other units thinking I looked ridiculous... downward facing dog and all; but I'm getting over my fear of what other people think.

The other obvious thing about nervous exhaustion is that the cure involves large amounts of rest. That means doing nothing, which I struggle with so I've borrowed a heap of guided meditation CDs from the local library to help with that. Meditainment Stress Relief and The Stress First Aid Kit are my favourites so far.

My other exciting news is I've won two Toastmasters humorous speech contests lately, meaning I progress to the next level. I'd love to be a comedian one day when my health is back, and I've been studying everything I can get my hands on about comedy. Besides, laughter is a great stress relief. I hope you've had a laugh today!

I've had a cold for the last 5 or so days, during which time the weather here in Sydney has been raining, cold and miserable. It started raining right after I put my washing was on the line on Tuesday. Friday night I finally gave up, dragged it in and put it in the dryer.

Meanwhile, I've persisted in doing my morning yoga/breathwork/meditation ala Art of Living, and it seems to be working. My experience of this cold has been relatively mild. I know there's something more going on than my usual flu-like symptoms, because the phlegm is chunky and yellow. Oh gross. Aren't you glad to learn about that?

I've also got hold of some Blackmores PPMP (Potassium Phosphate/Magnesium Phosphate) that another CFS blogger said worked wonders for him. It's part of their practitioner range so not all chemists stock it, and they have to have certain credentials even to order it. But if you call the Blackmores' info line on 1 800 803 760 (in Australia) they can tell you a pharmacy nearby who can order it for you. Or it looks like you can buy it online from EMed if you fill in their health survey. I don't know what's available that's equivalent for those of you outside Australia.

Aside from the cold, things haven't been too bad. I've been preparing to go away to visit my sister's holiday house for a couple of months to get a change of scenery. I'll be lonely, so please Skype me if you're ill and want to chat, or if you're well and want to chat! My plan is to finish a book I started writing a few years ago pre-CFS... let's see if I've still got it in me. No doubt I'll work on one or more of my blogs while I'm away too, as I have some half-finished articles ready to go.

I've even done my tax return for 2010/11, earlier than ever in history. So I'll be financially viable at least until I get back. The kitchen is a mess and I need to clean out the fridge and a cupboard with an exploded tin in it before I go. But aside from that, things are going OK for me. How about you?

I've been doing the daily yoga, meditation and breathwork practise that I learned at the Art of Living course, for about a half hour every morning. I find it a struggle at times, since part of me doesn't want to have to do it. It makes me cranky. But the yoga is good for my flexibility, and I seem to have more energy. It's a bit too early to be proclaiming miracle cure, but it seems to be working. I still feel like I have a cold, but it's not bothering me so much and I haven't been feeling like I need the afternoon naps as often. Another friend of mine with CFS has been doing the daily practise for 105 days, encounters similar resistance, and seems to be recovering. As he said to me on Skype this morning, "It's early days yet".

By the way, I've met some pretty cool people via this blog. If you want to set up a blog to help you connect with other people while you recover, check out my Build Your Own Blog website, starting with this article on How to Build Your Own Blog using WordPress.

Hi folks,

On the weekend I finally got around to doing the Art of Living course. It's recommended by Ashok in the Gupta Programme, and another friend of mine with CFS appears to be recovering while practicing the Art of Living techniques every day.

The techniques involve a combination of Yoga, meditation and breath work. I left on a high after the first evening... went to the supermarket and couldn't help but notice that I felt more confident interacting with the staff there. One of the guys offered to give me a discount of the barbequed chickens just because I asked what the story with them was. You can't normally barter in a supermarket here! Another suggested that I should come back at 4pm because that's when the nicest checkout chicks were there. Everyone seemed friendlier and more laid-back mood than normal; or was it just that I was, so I was more aware?

After the second day, I felt really tired. The breath work element (called Sudarshan Kriya) is really tiring to maintain. I kept wanting to stop, to give up. The leader said "just keep going, no matter what!". I have a lot of resistance to this whole self-discipline thing and it certainly kicks in when I do this practise. When we get to the end, I feel a mixture of exhausted and elated. All that extra oxygen seems to pack quite a punch, and banging your head against a brick wall feels great when you stop.

Day three we learned the home practice, and some Art of Living philosophy: good basic stuff about spreading kindness, living in the moment, letting go of fear and regret. A helpful reminder to lots of good stuff I've heard on courses before. I was pretty zonked by the end, and came home to bed where I slept pretty soundly.

The challenge comes after the course: you have to practice what you learned each morning for about 30 minutes. I've attempted morning Yoga before, and always given up after a couple of days. But I can see that if I don't move my body at all, I just feel wretched and jittery. I've lost all my flexibility over the last 3 years; I even have trouble putting socks on now because it's hard to reach my toes. Yoga is good for flexibility. I also think the breath work is the thing that will make the difference, but I find myself resisting enormously. Part of me would rather keep living on the adrenaline high, and doesn't want to have to do these silly breathing exercises. I think I'm just a big kid who hasn't grown up and doesn't want to do his homework.

Another part of me, though, is determined to get well. So I will do my daily yoga/meditation/breath work, goddam it!

If Ashok did the daily practice recommended by Art of Living, I suspect it had a greater effect on his recovery than the Stop-Stop-Stop business. So the central technique in his programme is looking a bit dubious to me now.

Anyone else done the Art of Living? How are you going with the daily practice?

Well, I finished my detox last Monday. It felt great to be able to eat again. I started off with fruit and a couple of vegetables, and then gradually reintroduced other things like bread and meat. Now I feel pretty much the way I did before the detox. I didn't notice any change in my flu-like symptoms; the nasal congestion and post nasal drip continued throughout. I'm even more skeptical of the whole detox idea now; I suspect the guy who put me onto it recovered for some other reason and just attributed it to the cleanse. After all, our bodies are constantly expelling waste they don't need... I can't see any reason why it would do it more efficiently just because we've replaced normal eating with a juice concoction. But I can add it to the list of things I can say I've tried, and I think having a whole week where I rested and didn't go out was good for me. If your symptoms are like mine, I'd recommend skipping the detox and having a one-week stay-at-home retreat where you eat healthy food instead.

What helped more this week was going to a sharing group that formed after my last path of love, and talking about just how scared I feel. I found myself crying unexpectedly. I think my inner child has a lot of nervous tension locked away. Releasing some of that made me feel a lot better. I'll be going to the group regularly, so I'm hoping for more similar breakthroughs. This weekend I'm studying David Shade's Erotic Hypnosis program... I'm fascinated by the power of the mind so this should be interesting!