I’ve been wary of graded exercise ever since the doctor who diagnosed me with CFS told me that “exercise is very important in CFS”. I was thinking “I’ve struggled to even drag myself to your office, and you’re telling me to exercise?!?”
However, there’s definitely something to be said for movement. The flu-like symptoms of CFS strongly suggest some kind of chronic infection, and the lymphatic system which is a vital part of our immune system relies on the movement of skeletal muscles to pump lymphatic fluid around since it lacks the heart-like pump that our circulatory system has. That means movement is good for our immune systems.
On the other hand, if the theories about CFS involving the amygdalae (the emotional centres of our brain) are correct, then it’s probably not just important to move: it might also be important to feel good while doing it.
Aside from the obvious problem of Post Exertional Malaise, there’s the fact that a lot of rehabilitation type and conventional exercise is really boring. I hated running for instance, even when I was 100% well. There’s generally not a lot to engage your brain in and distract yourself from the anxiety associated with CFS.
Until the recent arrival of Pokemon GO, that is. Obviously this only works if you’re already reasonably functional, and willing to take breaks so you don’t overdo it walking all over the neighbourhood. But this game is seriously addictive, motivates movement, gives you a focus other than being sick & getting better, and is mentally engaging since you have to keep stopping to visit Pokestops, catch Pokemon and engage in gym battles. Plus it’ll run your iPhone battery flat long before you exhaust your supply of ATP.